I once was the happy go lucky, loved mornings, kind of person most would wanna shoot @7am. Well on one of those go lucky days, I found out it was all over in a glimpse. (almost) I started my normal crazy mother of 7 morning routine. Get up early to take migraine meds, a couple cups of coffee,get ready for work & wake the bunch. Except today I started having the worst back pain, & no *it was not that time of the month* By the time I had made three dropoffs, I was @ work and started feeling numness, & pain, I in my right leg, I already had an MRI appt. that day, so I left earlier I went to see if I could get in early. I think she the lady was new, cuz I was waking to the si de & totally hunched. I was known well here, MRI,s, CT,s, Labs,….they did it all. & I had em all done atleast twice,plus many other exams. The Tech walked a patient out, & saw me balled up in the chair. Then blah blah blah,… who made her wait here like this? People behind the desk start to scurry, I was brrought a wheelchair in seconds it seems I was on that table. After bout an hour & a half later, He walked in again, says “Amy I think we have finally found it, you need to get dressed why I print your films, & wait for me.” He came out handed me my films, & a fax cover sheet, that just said “SYRINGOMYELIA” , & told me to head to the nearest trauma hosp… Well me trying to be a super mom, went down the road to the closest Urgent Care. Not even a 5 min. drive, & it took all I had to crawl (literally) into this place. I had the MRI & paper hanging out my mouth. A nurse finally walked out, asked what was wrong, & if I could get up. Spitting all the stuff outta my mouth, pointed to the paper. He immediately carried me to a room, & laid me down. He was takeing my stuff to Doc on call. After what seemed like an eternity, the Dr. & the x-ray tech came in, & they were atleast honest w/ me. The Dr. said he had never heard of it, & the tech said he hadn’t heard it since Med school. But they did inform me that I needed to get to a trauma 1 hosp.now, or they were gonna have me transported by air. I called my then boyfriend, now husband, & told him what was goin on. He arrived right as the Dr. was starting to dial the air evac. We told them which hospital I was gonna go to, thru all the pain I was actually happy. Happy that I wasn’t crazy the entire decade we were looking for answers to all my syptoms. I had heard it all, I was crazy, a hypochondraict, a drug seeker…. you name it, i’ve heard it. I guess I was glad I didn’t know the seriousness of my condition, or the fact this syrnx in my neck was so large that at that moment I was about to go paralyzed or looking death in the eye. So we get there, and before I could sit down, they were at the door w/ a wheelchair calling my name. So I get in a bed, & crying out in pain. They were giving me shots of morphine before they even hooked up the IV. That’s when we found out that my body doesn’t even take to it. I was getting double & triple shots every 15mins. and got no pain relief, just groggy after the 3rd or 4th shot. At one point I rolled over & there were about a dozen or more Drs.in my curtain, I turned to hubby & asked what was going on. One of the Drs. said sorry ma’am but you are the first person to come to this hospital w/ this diagnosis in over 20 yrs.
I spent a few days @ this hosp., but it was my daughters b-day party weekend, & it was to be at my house. Luckily my ex’s fiance at the time, worked @ a Drs. office across the street, she & my husband were promising I would stay on bed rest, & we got a wheelchair. It wasn’t enuff, but the fiance had a friend that was working on becoming a Dr. at the hospital, so she vouched for me to. So they finally agreed to let me go for 2 days only. To return to the other hospital @ 5am Mon. morning. I was going in for brain surgery, although I did not have Chiari, he was sure I did & they just couldn’t see it. So just as I am starting to move around w/ alot of Physical Therapy, I get a call from the neurosurgeons assistant, & she informs me that I had infact gotten worse, & was scheduled for immediate surgery at 5am tomarrow, be there for prep at 4am. so there I go again from talkin & walkin to being an infant again.
Well there is a lil tid bit bout me, so let’s hear from you. It has taken me 2 days to write this, but alot is cuz of my damn old computer. I was ready to print hrs. ago, but lost service, & then a school function for our youngest son, & out to eat. Start retyping what was lost, & alot that wasn’t needed. Due to my disease I forget alot of things, & then tend to start a story that starts another story. UUGH! I hate it, but early dementia has set in. P.S. I am almost 9yrs. post-op now, for now. My future holds more, new syrnx found, not sure how lg it is. It starts right under the !st shunt & we now it goes past T-9, I have another MRI on thoracic next week. So we shall see what the future holds after I climb into the magic machine. Plus I hope to learn how to blog soon PATIENCE please.
schmielzippernex 